That said, at my lowest moments of not being able to get out of bed or do the simplest daily tasks such as getting groceries or doing dishes, I began to think about what would motivate and help me in the middle of my pain and fatigue. Many times, my family did not understand what I was going through because I looked just fine on the outside. One day, I was able to do an activity and the next I could not. The inconsistency was hard on my family and friends. Many times, I felt no one understood.