September 25-The Dravet Syndrome Foundation's National Walk-A-Thon will be located at Busse Woods/Ned Brown Forest Preserve in Rolling Meadows.
At 9 and a half months Jordan had his first seizure; it lasted 25 minutes. By his second birthday he had logged over 145 seizures under his belt, and to date this number has risen to over 400. While most are brief, many have lasted between 25 and 45 minutes and necessitate calls to 911. Jordan was diagnosed with an intractable form of epilepsy called Severe Myoclonic Epilepsy of Infancy (SMEI), or Dravet Syndrome.
Dravet Syndrome is a rare and catastrophic form of epilepsy for which there currently is no cure. Jordan will not outgrow these seizures, and children with Dravet syndrome has a poor prognosis and has a high mortality rate. Currently, less than 500 children in the world that have this disease.
For more information about Dravet Syndrome, please visit http://www.dravetfoundation.org/.
For more information about the Walk-A-Thon, please call 773-865-7745.Copyright © 2014, The Baltimore Sun