RSS feeds allow Web site content to be gathered via feed reader software. Click the subscribe link to obtain the feed URL for this page. The feed will update when new content appears on this page.

Cystic Fibrosis

A collection of news and information related to Cystic Fibrosis published by this site and its partners.

Top Cystic Fibrosis Articles

Displaying items 121-132
  • State scorecard on children's health system: A on access; F on support

    State scorecard on children's health system: A on access; F on support
    Virginia ranked 48th, or third from the bottom, among states for providing all needed support services to families of special-needs children, according to a report released Tuesday. The Commonwealth Fund, a private foundation headquartered in New York...
  • Parents sue sperm bank over child's cystic fibrosis

    Parents sue sperm bank over child's cystic fibrosis
    An Oklahoma couple is suing a sperm bank, because their son was born with a chronic disease. They’re hoping their lawsuit will change the way that industry does business. Jaxon Kretchmar looks and sounds like any other 2-year-old. He loves...
  • Health Notes: Genetic testing is a growth business -- and good for your health, study claims

    <span style=color:#ff0000><b>Health Notes:</b></span> Genetic testing is a growth business -- and good for your health, study claims
    In a new report, The American Clinical Laboratory Association asserts that genetic testing and genomic clinical lab testing generates 116,000 jobs -- 44,000 directly, the rest indirectly -- and contributes $16.5 billion annually to the U.S. economy. In...
  • Joe Surf: Stand-up paddleboarding in fight against cystic fibrosis

    There are surfing fundraising events all over the world that do wonderful things to support worthy causes, but there is no cause that is more directly connected to surfing than the efforts to raise money and awareness in the fight against cystic...
  • Kalydeco: Toddler receives cystic fibrosis drug and condition nearly vanishes

    Kalydeco: Toddler receives cystic fibrosis drug and condition nearly vanishes
    You may not recognize two-and-a-half year old Rylee Thomas and for good reason. These days she's healthier, happier and heavier than she was in February. She was four years too young to take Kalydeco-- the first FDA approved drug to treat the cause of...
  • Cystic Fibrosis: Family's Hope comes in form of expensive drug

    Cystic Fibrosis: Family's Hope comes in form of expensive drug
    Rylee Thomas is two-and-half years old--she was diagnosed with cystic fibrosis before she was even born. Rylee’s mom Amy got the news early. "I hadn't even felt her kick yet and we knew she would have CF," Amy said. Amy and Rylee’s dad...
  • Pioneers win cross-town clash

    PROVIDENCE HIGH—Rivals Bellarmine-Jefferson High and Providence took the court in the final game of an all-day tournament benefiting a good cause Saturday at Providence High School. The game proved worthy of main-event status, as the Guards and the...
  • Pay It Forward Person Of The Week 5/18: Jamie Purchase

    Pay It Forward Person Of The Week 5/18: Jamie Purchase
    Jamie Purchase doesn't take her birthdays for granted. At 29, she's beating the odds in her fight with cystic fibrosis. "Every birthday is really special to me," Purhase told FOX 17 News. "I celebrate them with a lot of gusto, because I've made it...
  • Haakenson: Kekai, Reynolds, Verdone to enter hall

    The Surfers Hall of Fame has announced its 2012 class of inductees who will be honored in a ceremony in front of Huntington Surf & Sport on Main Street on Aug. 3, during the weeklongU.S. Openof Surfing. Rabbit Kekai, Dane Reynolds and Andy Verdone will...
  • NEA Gives Arts Grants to 14 Connecticut Groups

    The National Edowment for the Arts announced 863 grant recipients comprised of organizations and individual writers across the country. The awards total $22.543 million, encompass 15 artistic disciplines and fields, and support projects in 47 states,...
  • Arts center has new development director

    COSTA MESA — The Segerstrom Center for the Arts has hired the former vice president of the Children's Hospital of Orange County Children's Foundation as its new director of development. Tanya Lieber was recruited in a nationwide search because of...
  • Local Designers Teaming Up and Taking On Cystic Fibrosis

    Local Designers Teaming Up and Taking On Cystic Fibrosis
    New Orleans - Several emerging New Orleans fashion designers are teaming up with Vernon founder Chris Galliano and Robert LeBlanc of Lifestyle Revolution Group to create a unique and meaningful shopping experience at Vernon (2049 Magazine Street)....