If I die

In preparing these articles, The Sun relied on medical records, R.J.'s personal journals and interviews with family, friends, physicians, teachers and others.

The Sun received permission from R.J., his mother, Michele Voigt, and the Johns Hopkins Children's Center to be present during the last four weeks of R.J.'s life, except, at his mother's request, his death.

Most of the events described in this series were witnessed by the reporter and photographer. In addition, 15 families who have lost children, as well as more than 70 health care professionals, were interviewed.

Mom fulfills son's wish by helping other kids

Mom fulfills son's wish by helping other kids

For a short time yesterday, Johns Hopkins Children's Center patient Bradley Shipley got to be just another toddler in a toy store, albeit one set up in a hospital conference room for young patients like him.  More

Part 1 of 4: Never Give Up

The most difficult journey

That night after everyone had gone, when it was late and the hospital was quiet, the boy savored his triumph.  More

Part 2 of 4: The Angels are Coming

Buying time at a heavy price

The summer storm had been brewing for hours. From his hospital bed, R.J. Voigt looked out the tall window and watched the lightning streak across the gray sky.  More

Part 3 of 4: Final Choices

Learning how to say goodbye

No one knew why the boy started shimmying, going for the corners of his hospital bed. R.J. Voigt was suddenly restless, agitated. The 12-year-old kept calling out for his mom. But he didn't seem to know what he wanted. She kept asking the doctors, "Is this a sign?"  More

Part 4 of 4: Aftershocks

Living on, with heartbreak

The list seemed too long for one person to read, so the small group took turns. They stood round a table in a hushed conference room that December night a year ago. The grieving parents were far from the hospital, but as the wind and rain blew outside, the people who had looked after their children called out the names.  More

Resources

Initiative for Pediatric Palliative Care  More

Photos

Photos

Photos from the Sun series 'If I die'  More

Pediatric Palliative Care Q&A

Louise Montgomery, Denton, Maryland: I work with Palliative Patients at my center, most of which are elderly, I have a difficult time with people I have grown attached to. Please tell me how to help myself as well as other staff with grieving.  More


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